As we begin the new year, I'm reflecting on what I can change and can control. As a wise friend pointed out to me recently, pick something you have complete control over and find your mojo again. This is my quest for 2010. To get my mojo back!

Friday, March 5, 2010

update on emma grace

kay, so i thought i'd let you all know that i just got off the phone with the children's hospital neurology dept nurse and she told me that emma's mri results, are.................normal.
i exhaled for the first time since tuesday when we were up there taking it. i didn't realize how worried
i'd been. like i told my sister today when i called her with the results, in my heart-of-hearts i knew she
didn't have a tumor or anything, but when they roll your baby away in a drug-induced sleep for the mri you begin doubting your instincts and questioning yourself at every turn. "will she really be okay?" "does she have a tumor?" "will she be one of the kiddos locked up in the hospital for months undergoing chemo, have a bald head with a bandage on it from surgery...." the thoughts go flooding through your mind.
so when that wonderful nurse called me and told me the results, i exhaled.
just thought since you are all on this journey with me you'd want the results.
so it looks like she has the "hereditary epilepsy" us christensen peeps have/had. i outgrew mine, tommy
outgrew his.
so she has surgery scheduled for march 24th to take her adenoids. i'm hoping that will end her constant
trips to the doc and her constant illnesses.
first she has to pass the muster with the anesthesiologist at our clinic with our doc. if he/she doesn't want to do it then we'll go to children's in seattle for the procedure. i.will.not.step.foot.in.mary.bridge.ever.again!
not that they're awful or anything, but their neuro docs missed her diagnosis completely. they disregarded her non-fever seizures and lumped them all into being "just" febrile seizures. um, duh, she has "childhood seizure disorder" and needed to be put on meds a long time ago.
so more later. this is getting pretty long-winded.
thanks for your support and prayers.

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